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📢Resolved to No based on the creators last comment of "No autism testing"

Resolve?

I got my neuropsych results today. The self-reported test is not consistent with autism, so I'm not getting referred to do autism testing.

there ain’t shame let’s go

Do you have hobbies ? If so, do you forget to eat, drink ?

@nlhm 🧐

I think there's a substantial chance you are autistic but will choose not to get officially evaluated.

@Lsusr Unless there's a specific reason to get evaluated right now (such as special accomodations), you might as well preserve the optionality.

The base rate of autism in the population is - assuming chronic underdiagnosis of autism - probably like 2-3%.

The base rate of autism in people who enjoy hanging out on a prediction market site because they're so interested in certain topics that they're willing to bet (fake) money on them, though...

(source: am autistic and made an account to bet on my video game hyperfixations.)

Autism base diagnosis rates are 1.5 in 1000.

Asking for evaluation probably brings it up by a factor of 25? That's still 4%.

I think your symptoms are a little surprising but not surprising enough for a diagnosis.

@NoaNabeshima oh and also if it's not significantly affecting your life doctors might not want to even try diagnosing you.

@NoaNabeshima I also think friends thinking you might meet criteria for autism isn't that surprising. Young people self-diagnose w mental illnesses and suggest diagnoses to others lots these days?

@NoaNabeshima (not that I know if it's significantly affecting your life)

@NoaNabeshima

"Autism base diagnosis rates are 1.5 in 1000."

Your number is off by an order of magnitude

I'm voting NO because diagnosis and battling against the mental health system famously takes a lot of time

@Loop https://en.wikipedia.org/wiki/Epidemiology_of_autism#:~:text=Most%20recent%20reviews%20tend%20to,Rett%20syndrome%20are%20much%20rarer.

I was going by this
looks like estimates other than the first one on wikipedia are higher

@NoaNabeshima It's weird they give different numbers for 'autism' and 'ASD' given they refer to the same thing.

I've always seen number of 1% or more. The Wikipedia page for autism also states 1%.

(And the real value is probably higher still because autism is under-diagnosed)

@NoaNabeshima I looked at the causative factors section and my parents were ~35 yo when I was born and my mom had heavy bleeding during pregnancy and at birth

@Loop

> It is problematic to compare autism rates over the last three decades, as the diagnostic criteria for autism have changed with each revision of the Diagnostic and Statistical Manual (DSM), which outlines which symptoms meet the criteria for an ASD diagnosis. In 1983, the DSM did not recognize PDD-NOS or Asperger's syndrome, and the criteria for autistic disorder (AD) were more restrictive. The previous edition of the DSM, DSM-IV, included autistic disorder, childhood disintegrative disorder, PDD-NOS, and Asperger's syndrome. Due to inconsistencies in diagnosis and how much is still being learnt about autism, the most recent DSM (DSM-5) only has one diagnosis, autism spectrum disorder (ASD), which encompasses each of the previous four disorders. According to the new diagnostic criteria for ASD, one must have both struggles in social communication and interaction and restricted repetitive behaviors, interests and activities (RRBs).

@NoaNabeshima What proportion of people who get professionally evaluated for autism are diagnosed with autism? That seems like the relevant base-rate.

@NoaNabeshima I think you should reconsider your basic rate. As Evergreen mentioned, the question is more: what is the probability that one is autistic knowning that he's active on Manifold?

My own guess is like at least 7-20% 🤓

@Gyfer I mean we've met at least a couple times. So I have some info from hanging out with Samuel and I don't think he should move too far from base rates of people planning on talking w doc ab it.

@NoaNabeshima I looked at the childhood signs of autism and don’t think I experienced any of them, so that’s a strong signal against autism. I would first need to get a neurological exam, which is usually only given when they suspect something is wrong with your physical brain, before I can get a referral for the autism test, which is a very extensive and exhausting test. I am still moving forward with figuring this out with doctors and weighing the pros/cons of getting a diagnosis.

@NoaNabeshima interesting!

@Samuel I mean the things you list in description are very much in line with ASD (sensory problems, executive dysfunction and communications issues with non-autistic people are the 3 clusters of symptoms iirc)

@Loop yeah I read some papers and watched some videos, and some of the adult signs of autism do match. I also made a list of weird things I did as a child, and though they look normal independently, they look a bit strange in aggregate

@Samuel weird things I did in elementary school: basically only walked in circles around the play structure at recess every day for years (with a weirdish friend); put my hands in front of my chest and often pretended to be a sheep for ~2 years; would do a bunch of DIY crafts and bring them to school; cut out and pasted comic strips into a notebook until it filled up; would take off my socks and pants often; wore the school tshirt every day for 3 years instead of the collared shirt school uniform; would constantly adjust my shorts to make sure it was aligned with my belly button and check if there was a hole in the back; basically didn’t wear pants voluntarily until 10th grade and I have never wore jeans in my life